Recently, this blog post has
been making its
rounds on my facebook newsfeed. It's about how the writer thinks the word cripple is better than "disabled". So far three people have reposted it, but I did not read it until this morning. My friend Stephanie
commented that I was “ahead of the game,” so I gave it a glance.
I have been calling myself a
cripple for 12 years. When I first started doing it, people were appalled,
especially disabled people. Some of the most
common responses were, “You shouldn’t put
yourself down”; “you’re not crippled, you’re ‘differently abled’!”; “You don’t want the world to see you that way, do you?”
Now when I say it, most people are still appalled; but my fellow cripples? They’re giving
me the fist bump. It’s amazing what twelve years can do.
I am not saying that I made
this change single handedly. I didn’t. But in college I was one of the only people who were truly
proud of being disabled. While most other people in my age group were trying their best to
highlight the things that they could do, to show the world they were no different and to make
their disabilities a small (and insignificant) fraction of who they were, I was
shining a spotlight on mine and shouting “HEY YOU! LOOK AT ME! I AM CRIPPLED! I KNOW I’M AWESOME AND
YOU ARE TOTALLY JEALOUS.”
I remember sophomore year of
college, I chalked the phrase: Being disabled is fun; everyone should try it!”
on the sidewalk in front of my apartment. Later that night, the resident
advisors knocked on the door and started yelling at my roommate for the
offensive and discriminatory phrases she wrote on the sidewalk. She walked away
and said,
“Melissa, you have company.” I
rolled up to the door and smiled at the two girls. They were a lot nicer to me.
“You wrote this?” they asked.
“Yup,” I replied.
“Oh,” they said. “Have a nice
night.”
I closed the door. My roommate
couldn’t believe it.
“How can they think it’s
offensive and discriminatory when I write it but not when you do it?”
“What are they gonna do Stephy,
tell me my life isn’t fun? There was nothing
offensive about that. They are just not used to people like me being out and
proud.” We still laugh about that story to this day.
I was a cripple. I was done
apologizing for it. I wanted everyone to know I was sick of the issue being skirted around. Sick of being
asked “What do you like to be called?” and “Do you have any special needs we
should be concerned with?” and having to answer politely because people “meant well.” So I started answering
truthfully. “Melissa.” I’d say, and when they looked confused, “if you must,
just tell them I’m a cripple.” As for my needs, I actually told one person I hadn’t gotten laid in a
while. It turned out that wasn’t a need they were prepared to accommodate.
Their loss.
Calling myself a cripple was my
way of accepting my disability. It was completely liberating to no longer feel like it was my duty to make
other people feel okay about the fact that I was disabled; to try to fit in and
to be ‘normal’.
And why shouldn’t I be proud?
My disability has
put me through the ringer. It has knocked me down. It has said, “You’ll never succeed; you’ll never have real
friends and no one could ever love you or want you.” And in response, I told my disability to fuck
off, I had
succeeded. Not by fitting my square butt into a round hole or by insisting that I was
just like everyone else, but by embracing the fact that it didn’t and I wasn’t.
It worked for me, and apparently now it is working for others
as well. This is one change that I can embrace. Here’s to a world full of cripples; loud and proud and not
backing down.
You taught me how to deal and do it happily!! Thank you
ReplyDeleteGirl, you know I love you. :)
DeleteI had polio but i am not in a wheelchair, i have one and at the age of 40 i look more and more at that wheelchair. 8 have 2 adult kids and I have always walked with a really pronounced limp. My question is why being "crippled" has to do with a wheelchair. What about the ones that are not in one.
DeleteCool blog. I didn't know that my blog post was getting such a wide readership!
ReplyDeleteI had polio and have a wheelchair, but at this time in my life I have been fighting to keep from being in it. I have a very pronounced limp but why when they think of a disability they automatically think of someone in a wheelchair. What about the ones who fight everyday to stay out of one, but still have all the rejections and pain and obstacles as anyone who is disabled. Im 40 and have pain and looks and all the discrimination or more than someone in a wheelchair.
ReplyDeleteThanks for the comments.
DeleteI understand what you are saying. I do not believe that one has to use a wheelchair to be crippled at all. In fact, I use a wheelchair only part time, but I am a full time cripple. :)
Personally, I found that life in general is a lot easier from my chair. I have more freedom and independence, I can move faster, I have less pain and people even stare less when I am in my chair. granted I do have more physical barriers with the chair due to places not being accessible. Growing up my parents didn't want me to have a chair and give up on walking, but what i found out is that it is not all black and white, just because you use a wheelchair, does not necessarily mean that you will never walk again. A wheelchair is just another tool to help you navigate the world.
Not saying that you should use your chair. Everybody needs to make a decision that is right for them, just wanted to share that I have experienced disability both in a chair and out of one.